We went to the doctor this week and Logan's kidney numbers are not trending well. His creatitine and bun levels are both out of the normal range which has caused his Bun/Creatinine ratio to be out of the normal range. These three metrics are all indicators of kidney failure. However, his GFR remains barely in the normal range. I have a question out to the doctor as to which of these is the best overall indicator for kidney health, but even with that answer I fear the decline has begun.
If you look over the last three years his overall GFR has dropped 41 points. If that continues he will have complete kidney failure over the next three years. Over the last 18 months the decline has been pretty aggressive as you can see from the chart below. The more cystatin C in the body the less the kidneys are functioning to remove it. He is still considered to have very high kidney function for now but I am bracing myself for the next 6 month appt.
Logan is still a happy, goofy 5 year old who plays tricks on us on a daily basis. He is excited about going to kindergarten at Mason Public in 2.5 weeks. He starts soccer again in a few weeks as well and loves playing defense. He is practicing so hard to ride his bike and hopes to have it mastered by the end of the summer. Logan took a break from piano this summer but will start back up in the fall. At a friend's house last weekend Logan swam the length of their entire pool. We may be putting both him and Ethan in a swim team this fall.
The whole family is looking forward to the PKD walk this year on September 27 at 11:30 at Voice of America Park. If you would like to join our team you can sign up at the link below. While I am not coordinating the walk this year, I am still organizing the kids area. I may even be sitting in a dunk tank if you would like to take a shot at me. :)
As always we appreciate your love and support. Your friendship does make us stronger.
Ann & Dave
