Logan had another doctor visit yesterday. Dave went while I stayed with Ethan. Long story short the urinalysis came back the same as before but the medicine for blood pressure isn't helping at all. So we are supposed to continue to increase it doubling what he is taking now. In addition, one of the side effects is that his gums are growing. Dave asked will they stop after he gets used it it. The doctor non-nonchalantly said "No, he'll need to get a dentist to laser them off once they get too big. Excuse me? Do you know how painful that is? So the medicine has been quadrupled and all we have to show for it is a new issue that will cause Logan pain. At what point do we consider switching? Dave asked this and the doctor's response was, "Let's give it a little while."
So Dave and I have to figure out how to take blood pressure of a 3 year old accurately even though the nurses at Children's don't trust their results. The automatic blood pressure machine we got for Logan doesn't work on his arm as it continues to pump the air way above 200. Manual it is. The doctor said when he is active his blood pressure will be high, so we should try to take it after he has been resting for a while. Uh... he is 3 dude. The kid doesn't stop moving.
We have been given the ok to get an ultrasound anytime between now and four months from now when we see the doctor again. This will tell us the growth of his kidneys and if the cysts have spread to other organs. If they are in other organs it is an indicator that he has ADPKD.
On a happy note, Logan is still in great spirits. We are stilling being shown a lot of support. We'll continue to keep you posted.
Ann and Dave Wiesman
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