Logan remains the same. High blood pressure and playing around with meds. His kidney function remains normal so we are very happy. He will be going for an echo-cardiogram this coming Friday to see what the blood pressure has done to his heart. We finally have a goal for it 100/60 which is the 50% of normalcy. He is currently at 115/74.
On another note, I have been a member of the PKD in Children support group on facebook and I am now faced daily with the severity of this disease. No amount of research can prepare for the posts from a new mother that just loses her child to this horrific disease. I have gotten to hear from 5 in the course of 2.5 months. It breaks my heart and I cry profusely and then realize how lucky I am. Lucky that Logan's health hasn't hit bottom, lucky that each day he becomes stronger to be able to fight when something does happen, and lucky that I have amazing family and friends to support me. I have also read amazing stories of children with football sized kidneys at birth living through nephrectomy, dialysis, and transplant. This gives me hope. However, at the National Kidney Foundation walk we met a woman who had just lost her 23 year old daughter. Even with a transplant, there were "complications". I will always have to worry about how this disease will impact him. It doesn't end as he gets older. It doesn't end when he gets a transplant. It doesn't end when the doctor says he is healthy. There will always be follow up visits and checkups to ensure everything continues operating as expected.
I very much dread the day I have to tell him his children will have a 50/50 chance of inheriting this.
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