Static?

Logan's doctor's appointment yesterday was pretty good. His blood pressure is staying stable at 105/60 which is very good for him. He still doesn't appear to be growing. He is hovering around 46.5" and has been about that for a year and half. The doctor says he is still in the 50% range and we shouldn't worry. Which I can understand but a kid should be growing at least a little and I keep watching him drop from 80% to 65% to now 50%. His urinalysis came back pretty standard as well. No huge indicators.  However, his first round of blood work came back this morning and his creatinine  level has jumped by 41% which has me nervous. He is way outside the range of what is normal for a 6 year old but in the range for an adult. His BUN numbers jumped also by almost 100% which also has me freakin' out a little. So far my nephrologist is not worried. So I am trying to enhance my calm. 

Given where Logan is now at 6 the doctor has indicated he is feeling pretty confident that not much will hopefully change between now and puberty. The first few years of life needed more attention as Logan's body was growing and changing rapidly. The doctor indicates we should be in a plateau period (again hopefully) until Logan hits puberty. 

We did not do an ultrasound this year as it was making me depressed and there was nothing that could be done anyway. So next year we will have a full abdominal scan to ensure none of his other organs are impacted, mainly his liver. 

I captured pictures from the walk this year and all the support Logan had because the news so far as been so happy and these made me smile.  

Thanks for following along with us on this journey. 

Hugs and love to your family,

Ann and Dave